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Thread: Diana's story Part 1

  1. #31

    plugs

    I had plugs for about a year and I would go back to them in a heartbeat. Restasis and other things are keeping me at a pretty good level right now so I don't need them. I had the ones with the little head on and they didn't bother me at all. Everybody is different in that respect.
    Make sure your doctor has a lot of experience with plugs....how they fit etc. A good fit helps them stay in longer. Ask him what plugs he uses and why.
    I would try the temporary ones first, if I were you. Have no idea what the cost is for those. I know I came across some that would last as long as 6 or 9 months. Since people do have problems losing plugs, I would expect that we will see some improvement soon. Perhaps ones that take about a year or two to dissolve.
    I would be very skeptical of the non-dissolving ones without a head on. I would think these are the ones that get imbedded easily.

  2. by jcorbett:
    I would try the temporary ones first, if I were you. Have no idea what the cost is for those.
    My former OD used to put the temp dissolveable collagen plugs in me for free. Many, many times. Other people have said that they were charged. I have no idea why some docs decide to charge for them or how they arrive at the cost for their patients or why some docs do it for free but I think it's worth noting that they sure don't need to cost a lot.
    Cindy

    "People may not always remember exactly what you said or what you did, but they will always remember how you made them feel." ~ Unknown

  3. #33

    Plug cost

    Cindy brought up a good point.....the cost of plugs. I have had the 3 day temp ones put in for free also, but have never tried the longer lasting temp plugs and don't know if I would get charged or not.
    But if you are thinking about plugs, don't be afraid to ask what the cost is. I have heard of people who have paid $100 for plugs, and others who have paid $1000! Sometimes shopping around pays. In my area, it is the larger clinics who charge an arm and leg, and it seems the smaller practioners charge far less.

  4. #34
    Untkicker 29-i was very apprehensive about getting the plugs put in and
    made sure i asked lots of questions.nearly 5 weeks now and i dont know they are there.size 0.6mm was tried but jumped out and then 0.4mm and they
    have been fine.i am starting to feel a bit better and have definitely decreased
    my drops,gels.I also was lucky because i was about to go private and pay the earth but luckily i went to a different specialist and she put them in on the nhs (national health service)free.as others have said its a personal choice but i think it was a good move for me.
    Regarding the football-our type is the round ball and goals,I mixed yours
    up.Brian Mcbride is probably the most famous in our premier league followed
    by Brad Friedel and Kaisy Keller.
    good luck.
    Graham

  5. #35

    Hi Dianat

    [Hi Dianat,

    I had PRK about 1 yr. ago. It was the worst experience of my life, and am learning to deal with a severe dry r. eye. I had corneal erosion and felt like I had to live with it or get it fixed. They told me that my eyes shouldn't be any drier afterward. They were wrong. I use muro 128% ointment at night, am wearing the goggles that keep in moisture at night, and am considering buying a pair of the glasses to keep in moisture in the day. I also have puncutual plugs in 4 tearducts. I went to the Centre for Natural Healing in Ashland, OR, and talked to Donald Yance who advised washing my eyes with Prickly ash extract diluted (7drops in an eyecup, then fill with distilled water). I wash my eyes with this 2 x a day and use sesame seed oil drops that I have a pharmacist compound for about $45. They last about 2 mo. I use them about 3 x a day as well as non-preservative tears. I also do hot packs on my eyes, and a baking soda wash for my eyelids. I think its all helping. I also want to look into the DHEA eyedrops. Taking primrose evening oil and essential fatty acids too. Just some ideas. Anyway, good luck. Rocco

  6. #36
    Join Date
    May 2006
    Location
    Barnsley, South Yorkshire, UK
    Posts
    586

    Thank You

    Diana,

    I forwarded the link to your story onto a colleague's sister who has dry eyes and is currently considering Lasik.

    Whilst she is well aware of the challenges and misery I have faced since my surgery 10 months ago (and mine is touted as the "less invasive" "dry eye" friendly version). She is adament that using drops a few times a day isn't such a problem for her - if only it were that simple. I thought your story told it "like it is" and I am only regretful that I didn't read it before I underwent my 10 minute miracle procedure.

    Like you, I choose not to read my own original post, it is too upsetting. I live with the effects of the decision everyday.

    This site is fantastic as it allows me to unload my problem and hopefully other people reading it may just reconsider their procedure or at the very least have some information that they can quiz their surgeon with.

    Fortunately, I have a doctor that is committed to helping me resolve this as best as possible, I have had some improvements in the past couple of months so I live in hope that it will continue to improve and I too get my Graduation Certificate very soon.

    Even when I do graduate, I will still hang around as this site has been fantastic in helping me to cope with this and hopefully I can help others in turn.

    Unfortunately, I get quite depressed with this whole thing and the fact that I live in the UK whilst the rest of my family live on the other side of the world, coping is sometimes very difficult.

    On my bad days, I use this site to read others progress and it inspires me that I will be one of them one day soon.

    Thanks again for your inspiration

    Ian

  7. #37
    Ian (and Diana too)

    There is NO WAY I would consider Lasik after listening to both of your stories, along with many others. I have very painful dry eyes, but nothing like what you both have and are going thru (yet, anyway). The thought of doing Lasik to get rid of wearing my eyeglasses is SO NOT WORTH IT. When I had to stop wearing contacts (probably forever), that was a tough day, but nothing in comparison to chronic dry eye pain... Hopefully your stories will continue to touch many others and help dissuade them from LASIK surgery and all the risks incurred, particularly if they already have dry eyes...

  8. #38
    Join Date
    Feb 2005
    Location
    Cincinnati, OH
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    1,247
    Judy and Ian,

    I have certainly come a long way since I wrote my story. The biggest change is in my coping abilities and not so much in my eyes. I am more manageable I'll admit, which is no small matter. But, being past the post-traumatic stress of it all has been a huge improvement. I really think the mental game can be worse than the actual eye pain.

    The birth of my son last year has been another victory for me. I often think of what a gutsy move it was and how a couple years ago I never thought I'd manage it.

    I am happy that my story - which I've noticed is now stuck up at the top - has been meaningful to everyone. It is great to know that it can successfully be used to dissuade people from this risky surgery. I also know of LASIK casualties who have shared my story with family to help them understand the problem better. It's surely a tough thing to try and communicate to those that are close to us. My story seems to put it all in perspective.

    God bless Rebecca for all her hard work for making this site available and keeping this site going. It means a heck of a lot to me.

    Diana

  9. #39
    Join Date
    Sep 2006
    Location
    Charleston, SC
    Posts
    5

    Smile Dry Eye Sympathy

    Diana, I'm new to the site and still exploring, but I read your story and sympathize so much. It also made me realize again that my situation could be much worse! I have severe chronic dry eye due to radiation therapy..it damaged my tear ducts to the point they don't function at all now. I had to stop working since I am no longer able to stare at a computer screen for 12 hours a day, let alone read regular print. I use ointment at night and gel artificial tears several times an hour. I avoid ceiling fans, air vents, wind, smoke and direct bright sunlight. I cannot drive at night. On a good day I can read large print books in short spurts, but I normally listen to audio books now. I'm sure you can understand about the need to control your environment.....and sometimes being out in public is just plain miserable! I cannot imagine having to wear goggles all the time as you do..I get annoyed enough having to wear sunglasses as much as I do. I have at least progressed from having almost constant blurry vision to only when I overwork my eyes. And I can wear my regular prescription sunglasses instead of the huge wrap arounds now. It seems that the degree of lubrication and rest I'm giving my eyes is helping to some extent at least. It's still frustrating in many ways, but I must say you have much more to deal with having small children plus a baby. I'm glad to hear you have such great support from your husband and family. I'm fortunate there as well....in a couple of days I'm marrying a wonderful man who has stood by me thru my cancer diagnosis and all the surgeries and radiation and having to stop working. It must be true love! Anyway, this seems like a great site for support and information and I hope my message finds you happy and hopefully more comfortable as you continue to dig for information to help yourself. Sometimes I guess that's all you can do when the docs fail you. Take care!

  10. #40

    Confused

    Hello everyone

    I hope your dry eyes are okay today, I have DES and have not had any surgery...yet. My eyes have rejected contact lenses now, I have swam competeively all my life and would love to be able to see the end of the pool. I'm 23 and very active. I am looking to have epi-lasek done, that's the one without the cut. I have researched this for months and have read many of the posting on this website. I am volunteering in Africa this Summer and will be there four months and have considered surgery before I go however I am confused about whether to go ahead with this procedure. I have dry eyes now, do you think this would just be worse after surgery? From what I have read I am thinking yes, you all have had lasik, does anyone know if this is the same for epi lasek? Ian on another thread had induced dry eye after epi lasek but my posting didn't work there. Hope none of you mind advising me as I am seriously doubting whether to go ahead now.

    Thank you for taking the time to read this.

    Take care

    Jennifer

  11. #41
    Join Date
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    Quote Originally Posted by Jennifer
    Ian on another thread had induced dry eye after epi lasek but my posting didn't work there. Hope none of you mind advising me as I am seriously doubting whether to go ahead now.
    Hi Jennifer,

    Actually, your post DID work but I moved it to a new thread so that more people would see it and comment on it. I'm sorry for the confusion! Please click here to see your original post and the replies to it so far.
    Rebecca Petris
    The Dry Eye Zone

  12. #42

    Your story could be mine.

    I am so sorry that you have gone through so much. I have written my story, "Years of Hell," and I think we have so much in common. As do so many on this site. I have not "come out on the other side" yet, as you seem to have done. Perhaps I never will. I am still very depressed and very angry at myself and the doctors who did this to me. Congratulations on your new little one(s).

    Jody

  13. #43
    Join Date
    Feb 2005
    Location
    Cincinnati, OH
    Posts
    1,247
    Hi Jody.

    My heart aches when I hear stories like yours. Nobody should have to cope with this, and for so long. It is a crime what has been done to us.

    In response to your previous post, I believe the surgery will never be banned. We may see with some pressure the the pre-surgery qualifications become more strict, which is a step in the right direction. Naturally I don't think cutting into anybody's healthy tissue is appropriate, but a complete ban...I don't think so.

    I didn't exactly come full circle in my LASIK story, but I'm living again and managing. I am far better than I was when I wrote my story. But make no mistake...I'm still lousy on a good day. My story probably deserves a follow-up, but it was originally written to tell the untold truth about LASIK. I also wanted it to dissuade people from having the surgery.

    I am no longer angry at my surgeon...I just never really had the energy for it. It wouldn't do me any good anyway. He was of no help to me when I was at my worst and led me to believe my obvious anxiety was caused by something other than my eyes. He also should have also listened more closely when I described my years of contact lens intolerance prior to surgery. This is a key point that apparently LASIK doctors overlook. So I guess that makes my LASIK doctor an unfeeling ass. Still, hating him gets me nowhere.

    I know this sounds like a tall order, but do try to throw the anger and guilt...especially the guilt. It's a waste of time and in some way gets in the way of your mental and physical healing. It's just totally non-productive. Spend your energies on more productive things.

    We didn't sign up for this, nor did we intend to induce pain upon ourselves. Your LASIK doctor didn't intend for it either. Mine was intending to cut into his own daughter as soon as he felt she was old enough.

    Have you given any more thought to a dialog with the Boston Foundation for Sight? This would be far more productive than dwelling on guilt and selfish LASIK surgeons.

    Diana
    Last edited by dianat; 04-Jan-2008 at 23:45.
    Never play leapfrog with a unicorn.

  14. #44
    Join Date
    Jan 2008
    Location
    Chicago area
    Posts
    83
    Hi, Diana,
    My name is Diana too. Today is my first time on this website. I have read your stories and you sound so similar to me. I had RK in early 1993 and in a few months I had the intense eye dryness and pain. I traveled all over searching for an answer to no avail. I went through a pregnancy, and yes, at the beginning the dryness was unbearable, towards the end the dryness was non-existent, and the day I had the baby, the dryness came back worse than ever. I didn't work for 5 years because of the severe symptoms.
    I suffered with dryness and pain for 7 years after the RK and then it went away for 6 years. I had a few mild symtoms in those years but they were nothing compared to what I had gone through before. Then, suddenly, a year ago my symptoms came back in full force. I had a temporary reprieve last summer using erythromycin ointment in the lower eyelids at night, but it stopped working in late August.
    Now my concern is survival. I'm not sure how much longer I can keep working--I have to be on call at night and work really early in the morning and really late at night--all of which is hard on dry eyes. My dry eyes were very hard on my marriage. I'm divorced now and of course am my sole supporter. Functioning at work is sometimes almost impossible. I keep thinking any day now will be my last day. I've thought about social security disability, which I know is hard to get. I too, have had suicidal thoughts. I'm just so sick of living like this.
    I am so sorry for what we all have had to go through. Back in 1993, all of the corneal specialists I went to told me that I was the only RK patient who had these severe dry eye symptoms. I truly think it's way more prevalent than they want to admit. All of these doctors were RK surgeons as well as corneal specialists. I think they wanted to do the surgeries because it was a new advancement in their field, and they weren't going to let dry eyes stop them.
    Have your moisture chamber glasses/goggles helped you with your symptoms? I ordered some onion goggles. I'm hoping they help with reading and TV.
    Thanks for sharing your experiences. Not that I want anyone to go through what I've gone through, but I've never heard from anybody else who experienced what I have.
    Diana

  15. #45
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    Feb 2005
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    Cincinnati, OH
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    Diana, check your private messages.

    Dianat
    Never play leapfrog with a unicorn.

  16. #46
    Join Date
    Sep 2007
    Location
    Europe
    Posts
    354
    Sorry to hear your story but glad you found this site, hope it does give you some inspirations to find some relief. Sounds like you've not had any good doctors at all helping you out, which is really awful.

  17. #47
    Join Date
    Jun 2007
    Location
    Germany
    Posts
    75

    Hi Diana

    felt extremely sad while reading your story! I hope you find relief someday, I really do!!!!!!!!!!!!!! Take care and all the best to you!!!


    Shahara

  18. #48
    Join Date
    Aug 2008
    Location
    Canada
    Posts
    1

    Thanks for saving me with your stories

    I just want you all to know that I was scheduled for lasik and am definitely NOT going through with it due to all that I've read. I had a weird "hunch of doom" about it which I thought was strange since I've always wanted it and finally could afford it. I wondered why I wasn't excited. I am not usually an anti-risk person. It was almost a psychic-y hunch...now I think it was an angel whispering a warning in my ear. And it made me get up in the middle of the night last night and surf around and find your stories. Thank you. And good luck to you.

  19. #49

    Thanks a Bunch

    I am so happy to hear about your decision. You just made my day! Thanks a whole bunch.

  20. #50
    Join Date
    Feb 2005
    Location
    Great Lakes area
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    Thanksabunch

    You made my day too! I am not a risk taker either. I wish I'd seen some anti-lasik material before I had mine. I noticed the morning of my lasik that many people didn't show up. We were herded in like cows. I thought probably those people had not been able to get the $$ together. Perhaps they were just smart. Glad you didn't take the risk. Lucy
    Don't trust any refractive surgeon with YOUR eyes.

    The Dry Eye Queen

  21. #51
    Join Date
    Feb 2009
    Location
    Cyberspace
    Posts
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    Dry eyes

    Hello Diana
    I have just registered with The Dry Eye Zone and this is my first time reading some of these stories.I thought my problem was bad until I read your story. My situation started suddenly on July 2008, Both my eyes were bothering me all day,I didn't go through operation in my whole life.My eyes case: sandy,mucous fall,no tears,half opened,feel more comfort in closing them.I visited 3 different Doctors each of them prescribed different kinds of eye drops ,the last Doctor told me that I had eye dryness he told me to use Refresh liquigel but unfortunately my eyes became worse.Then I began to search and study in the internet about eye dryness,I found that lacrimal plugs can be a solution.I went to a Ophthalmalogist and told him my eye story.He said that I had to perform lacrymal plugs operation.He didn't test my tear output.
    On October 2008 the doctor insert 2 lower lacrymal plugs and prescribed refresh liquigel when needed.I felt much better but the viscousity of refresh liquigel irritates my eyes,so I stopped it.I began to search the internet and I found that Flax seed capsules,massage eye lids and forced blinking stimulates tear flow.Since 10 days I started to take one capsule per day,I'm feeling much better now.I hope a last longing progress cure.
    Sorry for my bad language writing

    Good luck

  22. #52
    Join Date
    Oct 2009
    Location
    los angeles
    Posts
    52

    Diana, I read your story

    Im very moved by your story and want you to know that the support you have from the members here is something you will always be able to count on. I wonder if you have looked at another option that may help you. Its called cornea transplant. Below is Mayo clinic link. I know from expereince about organ transplants and thought to myself; Would a cornea transplant help you and others. see link below

    Steve

    http://www.mayoclinic.com/health/cor...splant/MY00491

    Why it's done

    Risks

    How you prepare

    What you can expect

    Results

  23. #53
    Join Date
    Mar 2011
    Location
    FL
    Posts
    1
    Oh Diana that was just a very sad story, my deepest sympathy for you. I hope everything's doing great with you now. Have faith and trust in God.

  24. #54
    Quote Originally Posted by dianat View Post
    You'e made my day, Kyle. You pass that story around as far and wide as you like.
    Sad to hear your story diana. May God provide you a good health in the future.

  25. #55
    Join Date
    Sep 2009
    Location
    NE AR
    Posts
    54
    I'm going to save this post so I can show it to my son who is always talking about getting Lasik "someday." Being extremely nearsighted isn't the worst thing in the world.

    Thanks for posting.

  26. #56
    That's a great Gesture from pecan to diana

  27. #57
    Join Date
    Jun 2012
    Location
    France / Poland
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    Hello Diana,
    it's been so many years since you wrote your story and I hope you are well nowadays.

    My story is very similar, I had the happiest 30 years of life, I was a mum and enjoyed my life. Two years ago I had the surgery in the most expensive and reputable clinic in the city, as I didn't want to save on my safety.
    Even my glass prescription was like yours.

    Now my biggest fear is not only that I won't be able to do my job anymore, but that my son will never have any siblings. He would probably have one already, he is four years old and keeps asking for them.
    I can't see how I could cope with pregnancy and look after the baby with my erosions, pain and depressions. How to get up and run to check the crying baby when you need a few minutes to open your eyes? And so many other issues..
    I hope I will be able some day if you could.

    Thank you for sharing your story and all the best.
    Joanna
    Last edited by joanna; 11-Oct-2012 at 10:11.

  28. #58
    Join Date
    Jun 2012
    Location
    Sweden
    Posts
    195
    Hi,
    Reading all your stories I am amazed that I had no problems for all these years after all my surgeries. I had minus 12 before my MKM in 1987 (which was mechanical Lasik before laser existed, quite brutal!) and then another lasik on top of that nine years later i n one eye. My corneas are extremely thin. And I had cataract surgery and crosslinking in one eye also. And I had dry eyes and GPC BEFORE the surgeries! Didn't ever need one single lubricant drop after surgery - until now!! Weird..... eyes works in mysterious ways. Hope your are feeling much Petter today Diana!

  29. #59
    Join Date
    Aug 2012
    Location
    Ohio
    Posts
    21
    Hi Diana- I can totally relate especially the part about driving in your car, there are times that I think I should not even be on the road. I have to pull over sometimes and just keep my eyes closed til they get good enough to make it home or wherever I am going. This has taken over my life- stores- restaurants and even church. I could not read all your story-I limit what I do with my eyes. I just want to say stay strong and its wonderful that you have such a loving family. I have Sjrogens and thats what has caused my dry eye. I am with you on being thankful I still have my site-Good Luck

  30. #60
    Join Date
    Dec 2012
    Location
    Egypt , Cairo
    Posts
    25
    Hi Diana,

    I read your story , i would like to know , the condition of your eyes now.
    I am hesitating about whether to do the ilasik surgery or not , i read many good stories about how successful and great this surgery , it is the first time for me to read a negative opinion about Lasik.
    i noticed that you posted your story on 2005 , may be the new ilasik is better than that you did ? what do you think.?
    thanks a lot for sharing your story.

    Regards,
    Ibrahim

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