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Thread: Demodex mites & Cliradex

  1. #1
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    Demodex mites & Cliradex

    Hi all - I was just prescribed Cliradex wipes today for demodex mites. I'm excited because I have suspected demodex was causing some of my eye problems, particularly the redness. Anyway, my doc mentioned to wash my bed sheets often and that the Cliradex website had info about this too, but I can't find it. So I'm wondering if anyone has any info about this. Do I need to wash them daily or is once a week enough? Thanks!

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    I think I've found my answer - looks like every week.

    Also, I just wanted to vent a bit about this. I've been to 5 different eye docs and have been dealing with my symptoms for 9 years now. I asked each doc if demodex was my problem and they all dismissed the idea entirely. At my appointment 8 weeks before the one I had yesterday, I told my doc I really though this is what I had based upon all of the reading I've done about it and thankfully he was open to the idea and agreed it might be. He prescribed an antibiotic drop since I had mentioned that two times over the past two years I'd ended up with pink eye those drops made my eyes feel a lot better. He said, 'well, you have dirty tears so that makes sense' and he then prescribed a very low dose antibiotic drop for me to use daily.

    Yesterday was my follow-up appointment and he started out by saying that he'd done some research about demodex (finally!) and that he agreed I have them. He said he could see the tails of a few on each lid....so....he prescribed Cliradex pads which I had mentioned at my previous visit and he said they didn't have those yet. I emailed the groups website because it supposed to be "the" place to go with the best docs and let them know that a few other smaller offices already had them available to patients and was hoping they could look into getting them. I was sent a reply a few weeks later and told that they would probably have them in by my next appointment. Also, yesterday he said my tear film looks the best it ever has so the drops must have been helping kill the bacteria the mites are spreading. I asked if we should remove my punctual plugs since my "tears are dirty" he then looked and said that my intracanicular (sp?) plugs had dissolved (which I didn't think it was possible) but he said they were made of collagen not silicone.

    Sorry this rant is so long and that I'm rambling on! Here's the clincher....I said that I was really happy to finally have a tool to try to combat the demodex and said that when I mention it to people (the demodex) no one has ever heard of it. He said, and I quote "Well, I wouldn't tell anyone you have this. It's not something you want to talk about." So....okay....now I feel ashamed that I have them....I asked how do people typically end up with them and he said "they're like lice". Um, okay...lice feed on *clean* hair (I've never had it by the way and told him that.) He then told the tech in the room who was writing on my exit papers to just put "dry eye" as the reason for my visit - we don't want to embarrass her. The Cliradex was also made available to me in the optical area but *very* discreetly - I felt like I was buying illegal drugs. Add to that the extremely rude check-out girl and I was not happy at all at that point.

    So...according to my doc all of us who end up with a demodex problem are dirty (nothing could be farther from the truth - I actually have OCD and am obsessive about personal hygiene - always have been. Also have always washed our sheets weekly) and should be ashamed that we've gotten these mites.....In all of his research did he not read that 20-80% of all humans have demodex living on them already???? Or that people with autoimmune issues are more likely to have a problem with them??? I have two (Hashimoto's Thyroiditis and Reynaud's Syndrome).

    Thanks for letting me vent - it has made me feel better.
    Last edited by alisonW; 25-Jul-2013 at 09:06.

  3. #3
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    I read your post.. Going to post a response later lol my eyes can't handle it ATM! Lol

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    Alison I wonder about Demodex too....what are your symptoms? I cant believe though that I have been to so many docs and NONE of them noticed it. Would a regular slit lamp visit detect them?

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    Thanks for reading Faith1989 & I completely understand the eye thing.

    Katewest - my symptoms are: dryness, burning, constantly red eyes, sporadic itching, occasional gritty feeling.

    I had been diagnosed as having: severe dry eye syndrome, blepharitis, and meibomian gland dysfunction. I self-diagnosed myself as having ocular rosacea since I have very, very mild facial rosacea and neither my dermatologist or any of the eye docs knew much about it and just said "you might have it" - because I have the constant eyeball redness (which no one could explain) - and that seems to be associated with OR. Apparently, based on my research about demodex, an infestation of mites can cause chronic redness too.

    Yesterday when my doc said he saw some "tails" it was just under the slit lamp.

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    Why dont you think the other docs saw the "tails"?

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    I have no idea Katewest....that's the million dollar question for me 5 docs & 9 years later. Maybe they didn't believe it was a possibility so they didn't even look. Some of the links I read about demodex mites indicate that only now are docs beginning to understand the impact that they can have on us with regard to our eyes. There is even a term for blepharitis caused by demodex mites but I can't remember it right now.

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    Hi AlisonW,

    Although my membership status says that I'm a family or advocate, I actually had demodex when i first joined this forum, just not dry eye. It's VERY common. Apparently, it's age dependent, and 84% of the population at age 60 have it and a whopping 100% of the population over the age of 70!!!! You shouldn't feel ashamed at all because it is the most common ectoparasite that humans can have. It's just when an overgrowth happens that it can cause ocular rosacea, blepharitis, conjunctivitis (inflamed eyes), and even meibomian gland dysfunction (BECAUSE THE MITES LIVE IN OIL!!). Shame on your doctor for making you feel ashamed. I used Cliradex for 2 months, and my all of my symptoms are now gone!! it's really a game changer. In my opinion, it might be more expensive than the other eye hygiene products I used to use, but that's because it works! I have a bunch of papers that I've read about demodex, so if you're interested, message me!

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    oh by the way, be careful to follow the instructions when using Cliradex, because I wasn't warned that it has this cooling/menthol-like sensation, and it can surprise you if you're not ready for it. it even stings if you get it in your eyes. I complained to my doc, but he told me to let it air dry before opening your eyes and to not wash off the Cliradex after.

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    Thanks for your reply angyeo - you made me feel better as well as gave me some great info. I'm so glad that Cliradex worked for you. I'm hopeful now that I will have the same results. Do you still use the Cliradex as maintenance or was the two months using them enough to get rid of the mites?

  11. #11
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    This procedure can really help you: http://www.rysurg.com/index.php/procedure-video

    Also please check my thread for all things Demodex: http://www.dryeyezone.com/talk/showt...?17359-Demodex!

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    Thanks for the links hankm9 - I will check them out.

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    Hi alisonw, I do use Cliradex as a maintenance, but I don't use it everyday now. I think the length you may have to use Cliradex for will depend on the amount of mites you have to begin with.

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    I just got the Cliradex and wipes today and tried the first one. OMG it hurt SO much. I know you are supposed to let it dry but my first reaction was to towel them off. They were super red after and watery. How long before the reaction is not this bad?

  15. #15
    Quote Originally Posted by Katewest View Post
    How long before the reaction is not this bad?
    For me it was about 10 days. I used to use them twice a day, but that became too irritating to the lids. I use the wipes 1x per day now around 7pm.

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    And when did you see a difference (if you did) in symptoms?

  17. #17
    Symtoms improved after a few weeks, maybe 3 or 4, but not dramatically. And the extreme discomort from the demodex die off subsided after about 10 days. I've been using some form of Tea Tree Oil nearly a year. The symptoms have been improving slowly. When stopping Cliradex for a short time, the symptoms became somewhat worse.

    Symptoms included veining on the lid margins, enlarged meibomian gland openings, something I call "lesions" on the lid margins, and redness on the skin inside the lids, bubbles in the tear film and a feeling of soapiness, and all manner of symptoms in the eye lashes - extra row of lashes, falling out, colorless, growing into each other. Except for the lashes, all symptoms have improved. Some of the symptoms, in particular the bubbles and soapiness, are also caused by secretion of free fatty acids which is a result of Hashimoto's hypothyroid, a co-morbidity in my case.

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    Interesting...I also have lashes that are kinda growing in an extra row. Some are tan as opposed to black and they fall out easily. It sounds like your main issue is not the Demodex though? I have veins on the white part of my eye and on the lids a little bit. But I dont really have "red eyes". Also docs always tell me I dont have dry eyes and there is no staining. UGH!

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    Hi all - I thought I'd post an update. I've used the Cliradex wipes for 12 days now (at night only) and have definitely noticed a positive change in my eyes. (Yay!) The first thing that has changed is that my eyes are not burning constantly. The second is that now when I'm somewhere with fluorescent lighting (stores, offices, pretty much every where except my home) my eyes are not as horribly red/veiny as they were. For me this is HUGE. That redness has bothered me as much as the dryness for these 9 years. (I used to get compliments on my eyes all the time when they were healthy and white and yes, I am vain - I like to look good.) They are still not 100% back to normal whiteness, but they are better and I'm hoping that when the 6 weeks is over, I will have improved even more. I'm also hoping the dryness will subside a bit and that my meibomian glands will be clearer too. I will update in another week or two. (I was out of town last week with no internet access.)

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    Great news Alison! how long into treatment before you saw results? Are you doing anything other than Cliradex?

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    Around day 5 or so there was no more burning. My eyes didn't looks as good today when I was out at Target so I'm not sure what's going on with that....

    I'm also using a very low-dose antibiotic drop as mentioned above - "He prescribed an antibiotic drop since I had mentioned that two times over the past two years I'd ended up with pink eye those drops made my eyes feel a lot better. He said, 'well, you have dirty tears so that makes sense' and he then prescribed a very low dose antibiotic drop for me to use daily." It is supposed to counteract the bacteria the mites leave in the tear film.

    My eyes are still no where bear back to normal but I'll take even a little improvement right now.

  22. #22
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    Alison, do you have moisture chambers to wear in places like target? I don't think I would go into somewhere like that without them unless I am wearing my sclerals. I get funny looks sometimes from wearing sunglasses inside but I'd rather that than pain and red eyes. I am still getting used to the sclerals but my eyes are better when I have them on. BUT I am worried about long term use of contacts, and I get a rebound once they are off. My doctor said "it's normal" but I don't want to make myself worse so I don't wear them everyday.

    Congrats on the success! Let us know if it continues

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    Hi Faith1989 - no moisture chambers for me since I have to wear prescription glasses to see with. I've never had LASIK and can't wear contacts. I suppose I could get some with my prescription in them (I think?) but haven't yet. Yes, I'll keep you posted about my progress too.

  24. #24
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    My update:

    I just finished my 6 weeks using Cliradex and have had improvement because of it. My eyes are still dry, and burn at times but here are the positives.

    1. My eyes are less red then they used to be (by red - I am referring to the visible red veins).
    2. my eye doc said that the cylindrical dandruff I used to have on my lashes is gone (it was never visible to he naked eye) and that my lashes are now all coming in a lighter color - he was not sure what that meant or if it was common so was going to check into it.
    3. My tear film is "better" so I'm assuming the quality of my tears is too. Before he referred to them as "dirty tears".
    4. My miebomian glands are not nearly as clogged as they were.

    During the time I used the Cliradex I did not do any warm compresses or other lid scrubs at all. So...I guess it's a few steps in the right direction. Not a *cure* by any means since I'm still dry and they still burn.

    He asked me if I wanted to try contacts again and gave me a sample. I wore them yesterday and could only get 4 hours out of them and that was stretching it. I don't see him again until 6 mos. and am not sure if there are any other treatments we are going to try or if this is just as good as it gets for me - he really didn't say and I'm now kicking myself for not asking. I guess I will find out in 6 mos.

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    Update: I no longer need to use ointment at night. Refresh Optive Advanced before bed and then the Onyx goggles and for the first time in 9/10 years, I can get through the night. I still need PF drops every 4 hours or so during the day. My eyes are still too dry for contact lenses - after 4 hours they feel suctioned to my eyeball and very uncomfortable (I had a heck of a time removing the right one last time I wore a trial pair.) My eyes are also still not as red/veiny as they have been these past years (except when trying the contact lenses). All in all, there has definitely been some improvement for me and I am convinced that demodex was a contributing factor.

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