Hello Christinalatina, I was wondering if you had got a Moorfields view on this, partly because you've still got SPK after all these years and are just being seen once a year. I understand many ophth here in UK use bandage contact lenses and Moorfields are good at this but I would think someone there in the cornea team might be interested in helping you think about what's possible, partly because you sound like a very lovely person with such promising times ahead. Although I'm not in a position to give information because we haven't been this route, being paediatric, I'd be tempted to ask Valerie Saw what she thinks in private practice, if the cost is justified for you. It's just giving up the anti-inflammatory that's been helping so much that scares me. Also SPK means there's chronic keratitis inflammation that should be treated, I think. Have you got double-plugs? I'm so not in a position to say anything but can't stay quiet because I wonder if you could be helped more here while you're thinking about Boston.
Last edited by littlemermaid; 21-Jul-2012 at 06:06.
Paediatric ocular rosacea ~ primum non nocere