Karjade, I'm wondering if the glaucoma consultant can get some preservative-free eyedrops compounded for you? Moorfields might do some and I've noticed there are some new PF ones in the US. We were also wondering if she could adjust the treatment to reduce eyedrops - maybe use a diuretic if there's no risk? I'm finding that things are better when we have docs we can talk to and work with (I know this isn't easy to find) and that if we turn up again worse they can adjust the regime according to what's happening - did someone tell you to do a compress 2/day with this inflammation? (Dr L's advice and Unicorn and Rppnj sounds better, doesn't it) Packed off for 3m trial and error isn't enough when it's making things worse and the patient needs help.
It looks like there might be opportunities to get advice locally on what's actually happening and some current treatment recommendations - you might feel better informed about glaucoma treatment options and more in control of managing the dry eye and allergic inflammation symptoms (otherise, there's Oxford Eye Clinic or Moorfields consultants). As far as emotional support goes, I like to internet shop for an expert doc for some state-of-the-art advice, plus, as Unicorn says, a decent dry eye optometrist for backup. Then I feel better.
What do you think of this bloke (am I in the right town even)? http://www.prydal.co.uk/conditions.htm
And, especially, this bloke? http://uk.linkedin.com/pub/anthony-c...lauc/32/7b/235 - he is visiting optometrist in 2 local practices - he looks clued up, doesn't he, regional specialist in glaucoma plus dry eye/lid margin disorders - I wouldn't hesitate to ask his advice. Bonus, he's teaching and he knows his way round the hospital services.
If you need help finding your way around the local NHS, eg about getting seen again when treatment is making things worse, try Patient Liaison Service at the hospital or in the Primary Care Trust. They can be very supportive but practical.
First job is to 'phone the Eye Clinic or consultant's office and tell them it's worsening on their treatment and ask to be seen again.
What excellent experience above from Rppnj.
Last edited by littlemermaid; 23-Jul-2012 at 16:45.
Paediatric ocular rosacea ~ primum non nocere