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Getting my Life Back

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  • Getting my Life Back

    Hello All,

    I have followed the board for some time now, but this is my first posting. A little over a year ago, after sudden onset, an Opthamologist diagnosised me with dry eye syndrome. Fast forward to May of this year and the diagnosis became dry eye desease with low shermer’s scores, MGD, only 2 second tear film and possible ocular rosacea. Then the deep socket eye pain began and almost daily ocular migraines; most painful & miserable.

    The Long and short of it is that I have fought my way back, through considerable trial & error to a nearly normal life. If something didn’t work, I was on to researching & trying the next thing.

    Confirmed by recent eye dr appts, I now have working oil glands, a normal 10 second tear film and no pain. While reluctant to post, this is what working for me after considerable trial and error. I’’m not saying it will work for anyone else & I have no financial gain in any way from mentioning what has worked for me. So here goes:

    * without fail ... Twice daily ... morning & night: dry heat application, followed by Avenova, facial cleanser whipes from Trader Joe’s, one drop each eye of Regener-eyes which has kept Coronas smooth without abrasions. Eye docs were amazed that when my eyes were at worst corneas were healthy & smooth.

    * one capsule daily: cbd hemp oil (medical marijuana) for inflammation control. After trying Doxy, Restasis & xiidra (the later of which made me ill from various side effects)), I knew there must be a way to treat inflammation naturally & without side effects. Thanks to products like Charlotte’s Web CBD & Green Mountain CBD, I no longer have eye or head pain as I no longer have inflammation. Hemp oil is legal in all 50 states since contains 27 parts cbd to only 1 part thc. Like product profiled on 60 minutes to halp children overcome chronic seizures.

    * Retaine moisturizing drops ... down to about twice daily from many times per day earlier on. Found Refresh (even the newer one with flax oil) made my eyes worse. Seem to be allergic to an ingredient in Refresh, but not Retaine.

    * IPL treatments ... 4 since June to open oil/ membobian glands. Also, CBD has helped to keep inflammation at bay which also helps to keep oil flowing.

    in Dec will have lipiflow as doc says since I no longer have much inflammation I am now candidate for procedure. Eye doc says often patients have lipiflow procedure while they have inflammation and that’s why doesn't’ always work.

    IPL & CBD have been biggest game changer for me.

    Please don’’t hesitate to post or message with questions. I too have greatly suffered from this treatable condition.

    Last edited by Lauren48; 19-Oct-2017, 01:04.

  • #2
    Great post that gives my great hope. Can I ask has your schirmers score\ tear production improved vastly along with your tear film break up time?


    • #3
      Hello Matt. Thank you for your note. I have not had a recent schirmers retest, but have very recently seen both of my Opthalmologists (one a dry eye specialist) and unsolicited, both commented how good tear film is currently where as they had made comments about how “terrible” it was earlier on. Also forgot to mention, part of my daily routine is multi-vitiman, omega & flax seed oils, d3, probiotic. Lauren


      • #4
        Hi Lauren, which doc is doing your IPL treatments?


        • #5
          Hi Lauren,
          What's your preference between Charlotte’s Web CBD & Green Mountain CBD?


          • #6
            Green Mountain works me & has taken my pain &
            inflammation away. I also eat a relatively low inflammation diet. It is important to keep a level of cbd in your body so I take a capsule daily of the green mountain. Drinking enough water daily also helps. I’m finally living a normal life again.


            • #7
              I am very excited because I just in the last week started CBD (I have cibdex and Charlotte’s Web) and also just NOW went to the eye doctor who gave me my first sample of Regener-eyes (thanks to me requesting the company find me someone local).

              (I was on autologous serum which felt “right” but didn’t seem to be a cure, and lots of other things but with no luck really. They stopped allowing the autologous serum at the only pharmacy in California I could find, and that was after only one round of it. There was some kind of ban — don’t know if it’s permanent).

              I overdid the CBD and had bad dreams like I was stoned 2 nights ago. But last night I just did a small dose, and it felt ok.

              My history has been severe, painful dry eyes for almost 10 years since a hysterectomy... or was it since the emotional traumas accompanying the surgery?

              I will check in after a while to see how you are doing with CBD and also with Rener-eyes. I am quite excited about the prospect of a placenta-based eye drop — have always wanted to go to Mexico and have the placenta treatment. My MD just went down there with a bunch of patients, but it’s very expensive.