I have suffered for 5 years with severe dry eye and eye pain. The pain came on suddenly one day while shopping, 3/2005. I was fine one second and then in severe pain the next. Like ice pellets being shot into my eyes. My lower lashline felt like welding sparks or bacon grease was being splattered into them. I almost killed myself during those first 3 months. I saw over 20 eye doctors in and around Boston and they all said I had dry eye and ocular rosacea, they could not explain the severe pain I had. Several said it was psychosomatic. I was hospitalized and a neurologist suggested gabapentin 1200mg 3X/day. I also take tramadol 3X/day and cymbalta 60mg at bedtime. I use restasis, and thera tears (every 5-15 min), and celluvisc at bedtime AND during my afternoon "rest". My life isn't great. I miss out on a lot, my eyes are always dry and irritated but the pain I initially suffered is cut down enough now that I can function again. I did go to the Boston Foundation for Sight 2/2010 and I could not tolerate the lenses. The edges felt like they were trying to dig into my eyes (although the moisture was wonderful). They did a scan and told me my eyes were "hyper-sensitive" and that I have corneal neuralgia. [Not many eye doctors have accepted that this is a real diagnosis/disorder. In fact, when I was first given this diagnosis from my pain specialist/neurologist in 2006 I went to tell my corneal specialist and he laughed saying there was no such thing] They suggested a new therapy called the scrambler. I guess they place electrodes around your eyes and it's suppose to "scramble" the pain signals the nerves send. It's only for the neuralgia NOT for the dry eye. They said if it works I could cut down or stop the meds and possibly be able to use the sclera lenses. I have to admit it sounds good but when I was there only 1 other woman had had the treatment so I want to wait awhile and see where this goes.
No announcement yet.
I have severe dry eye and CORNEAL NEURALGIA